This is FaMe-Net

Family Medicine Network (FaMe-Net) is a practice-based research network (PBRN) affiliated to the Radboud University Medical Centre in Nijmegen, the Netherlands. FaMe-Net is the world’s oldest (1967) and still functioning PBRN. It is known for highly accurate and uniform registration.

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Mission

FaMe-Net aims to contribute to scientifically improving the quality of general practitioner care. To this end, the foundation uses systematically obtained data on patient contacts in general practice.

Vision

We believe it is important to substantiate family medicine by coding uniformly; taking into account individual patient factors, daily functioning and patient context. We find it important that the data and information we collect are (partly) freely accessible for use by third parties. We facilitate scientific research and publications that use our data to interpret general practice care. We support the use of our data for education and training of healthcare providers such as medical students, general practitioners and specialists.

Strategy

The general practices affiliated with the foundation record the following data uniformly and systematically:

Patient’s Reason for Encounter (RFE), diagnosis and diagnostic and therapeutic interventions performed by the general practitioner (according to the ICPC (International Classification of Primary Care))
Comprehensive context data of the patient
Functioning of the patient
The episode in which the patient’s question results in the final diagnosis and policy.

The foundation supports practices to ensure uniformity and thus quality of data through regular meetings and coding agreements.

Participating general practices

Currently (2022), FaMe-Net covers 6 general practices with more than 40.000 patients and 30 GPs.

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Current general practices	Number of enlisted patients (2021)	Start date of registering within FaMe-Net
Huisartsenpraktijk Amstelveen-Zuid	3769	17-04-1989
Huisartsenpraktijk Oosterhout	10024	02-12-2012
Universitair gezondheidscentrum Heijendael	5044	01-01-2013
Huisartsenpraktijk Thermion	11438	13-05-2013
Huisartsenpraktijk Bast en van Damme	1258	01-06-2019
Wijkgezondheidscentrum Lindenholt	9274	01-01-2021
Total	40807

Previous general practices	Number of enlisted patients at end of registration	Start date of registering within FaMe-Net	End date of registering within FaMe-Net
Huisartsenpraktijk Franeker (Het Bolwerk)	5660	01-01-1995	31-12-2016
Huisartsenpraktijk Olst (P. Dijksterhuis)	2533	01-09-2001	31-12-2018

Historic background

In the Netherlands, almost all inhabitants are listed with a general practitioner (GP) / family physician (FP), who deals with all health problems requiring professional medical care and is the gatekeeper to specialist care. The Dutch health care is explained here.

FaMe-Net is the continuation of two PBRNs, that fused in 2013: the Continuous Morbidity Registration (CMR) Nijmegen, registering epidemiology since 1967, and the ‘Transition Project’, registering since 1985. Both are built around episode registration, in which all information belonging to one health problem comes together in an episode of care.

The founding father of the world’s first PBRN (the Continuous Morbidity Registration), was Frans Huygen. He was professor in general practice in Nijmegen, the Netherlands, studying morbidity patterns in families, using data from the CMR. Moreover, he published the first edition of the medical textbook ‘Family Medicine’ in 1978, describing family medicine using data from the CMR.

FaMe-Net uses TransHis as its electronic patient record. TransHis is only used by the general practices participating in FaMe-Net.

Makers of Morbidity data platform

Hilde Luijks

Michael Ricking

Gert-Jan Kreeft

Floris van de Laar

Kees van Boven

The board of FaMe-Net

Annemarie Uijen

Chair

Mark van der Wel

Treasurer

Carla Walk

Coördinator

Henk Schers

Rogier Jaspers

Bertine Bast

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